For families and supporters of people with a learning disability......
For information and to increase awareness

Karen died of cancer in April 2013 when she was only 44.

This was the tragic ending to three years of distress and worry after Karen, who had a learning disability (LD), was moved from home following an assessment of capacity under the Mental Capacity Act 2005*.

Why have I decided to have Karen's Page?

To inform families of people with learning difficulties what problems they may encounter and help to prevent a similar tragedy happening to them.

Our SURVEY about annual health checks is now closed except for paper copies (see below):



As Karen loved butterflies I am using a butterfly as a symbol for improving the awareness of problems encountered by people with a learning disability and their families

*once over 18y a person must be assumed to have capacity unless it is established via an assessment that they lack capacity:

Update: The House of Lords Committee reports on misuse of the Mental Capacity Act 2005 - this article mentions Steven Neary's case. There needs to be a change in this law, repeal and/or proper training of those implementing it: BBC Article



Annual Health Check Survey - Now Closed but paper copies are still being accepted

Learning Disability Carers Community and Karen's Page have produced this NHS approved survey to investigate the uptake of annual health-checks for adults with learning difficulties and to investigate their quality. For this purpose it will be just as useful to us for the survey to be completed even if the person with learning disabilities that you care for does not attend for an annual health check.

Our survey is now closed but PAPER COPIES wii be accepted until May 20th as possible delays can happen. A full analysis of the given data and a report outlining our findings will be published in due course.

If anyone has any difficulty with the survey please do not hesitate to contact us: or

Our Survey is now closed but paper copies are being accepted until May 20th

Link to paper copy to print out:

Paper copy

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